Genetic privacy and non-discrimination
2004
Details
SymbolE/RES/2004/9
TitleGenetic privacy and non-discrimination
Summary
Urges States to ensure that no one shall be subjected to discrimination based on genetic information; also urges States to protect privacy of those subject to genetic testing and to ensure that genetic testing and the subsequent processing, use and storage of human genetic data is done with the prior, free, informed and express consent of the individual or authorization obtained in manner prescribed by law consistent with international law; calls upon States to take appropriate specific measures to prevent misuse of genetic information leading to discrimination against, or stigmatization of, individuals, members of their families or groups in all areas; also calls upon States to promote development and implementation of standards providing appropriate protection with regard to collection, storage, disclosure and use of genetic information taken from genetic tests; urges States to continue to support research in area of human genetics; decides to continue considering the various implications of question of genetic privacy and non-discrimination for ethical, legal, medical, employment, insurance-related and other aspects of social life, consistent with public international law and international human rights law.
Action note2004-07-21
Vote summary
Adopted without vote, 46th plenary meeting
Related resourceE/2004/99
DraftE/2004/L.13/Rev.1
Agenda information
E/2004/100 14i Genetic privacy and non-discrimination. GENETIC PRIVACY--DISCRIMINATION
Date2005
Notes
In: Resolutions and decisions of the Economic and Social Council, organizational session for 2004, New York, 21 Jan., 4-6, 13 and 27 Feb. and 3 May 2004; resumed organizational session for 2004, New York, 4 May and 3 and 15 June 2004; substantive session of 2004, New York, 28 June-23 July 2004; resumed substantive session of 2004, New York, 16 Sept. and 5 and 11 Nov. 2004 - E/2004/99 - p. 27-29 - (ESCOR, 2004, Suppl. no. 1).